Autism Spectrum Disorder

Federal Definition:

• Autism means a developmental disability significantly affecting verbal and nonverbal communication and social interaction, generally evident before age 3, that adversely affects a child's educational performance. Other characteristics often associated with autism are engagement in repetitive activities and stereotyped movements, resistance to environmental change or change in daily routines, and unusual responses to sensory experiences. The term does not apply if a child's educational performance is adversely affected primarily because the child has an emotional disturbance, as defined in paragraph (b)(4) of this section.
• A child who manifests the characteristics of "autism" after age 3 could be diagnosed as having "autism" if the criteria in paragraph (c)(1)(i) of this section are satisfied.

National Organizations/Resources

Asperger's Association of New England (AANE)

http://www.aane.org/
The Asperger's Association of New England (AANE) is made up of individuals with Asperger's Syndrome (AS), their families, friends and professionals. They are dedicated to improving the quality of life for people with AS and related conditions.

Autism Network International

http://ani.autistics.org/
Autism Network International is a self-help and advocacy organization for people who have autism.

Autism Research Institute

http://www.autism.com/
The Autism Research Institute (ARI) is primarily devoted to conducting research, and to disseminating the results of research, on the causes of autism and on methods of preventing, diagnosing and treating autism and other severe behavioral disorders of childhood.

Autism Research Center of Excellence - Boston University

http://www.bumc.bu.edu/anatneuro/research/autism/
The central purpose of this Center is to develop an integrated interdisciplinary program of research, which addresses the underlying causes, developmental course, and treatment of the social and affective deficits that define the syndrome of autism.

Autism Treatment Network (ATN)

http://www.autismtreatmentnetwork.org/
ATN's mission is to create a "gold standard" of medical treatment that will be made broadly available to physicians, researchers, parents, policy makers and others dedicated to enhancing the care of individuals with autism.

Collaborative Programs of Excellence in Autism (CPEA)

http://www.nichd.nih.gov/about/org/cdbpm/
The National Institute of Child Health and Human Development (NICHD) started a five-year, $45 million, international Network on the Neurobiology and Genetics of Autism. The Network included 10 Collaborative Programs of Excellence in Autism (CPEAs) that would conduct research to learn about the possible causes of autism, including genetic, immunological, and environmental factors.

Division TEACCH (Training and Education of Autistic and related Communication handicapped Children)

http://www.teacch.com/
TEACCH is a research-based program that describes a system of structuring learning environments and providing instruction to meet the needs of individuals with autism.

Flutie Foundation

http://www.dougflutiejrfoundation.org/
The Foundation's mission is to aid financially disadvantaged families who need assistance in caring for their children with autism; to fund education and research into the causes and consequences of childhood autism; and to serve as a clearinghouse and communications center for new programs and services developed for individuals with autism.

National Autism Center (NAC)

http://www.nationalautismcenter.org/
The goal of the National Autism Center is to serve children and adults with autism by responding to the rising demand for reliable information and by providing comprehensive, evidence-based resources for families and communities.

Professional Development in Autism (PDA), University of Washington

http://depts.washington.edu/pdacent/
The Professional Development in Autism Center (PDA) provides training and support for school districts, families and communities to ensure that students with ASD have access to high quality, evidence-based educational services in his or her local school district.

Studies to Advance Autism Research and Treatment (STAART)

http://www.nimh.nih.gov/research-funding/scientific-meetings/recurring-meetings/iacc/nih-initiatives/staart/index.shtml
The STAART Network is comprised of eight centers across the country. Each center contributes to the autism research base in the areas of causes, diagnosis, early detection, prevention, and treatment.

Statewide Autism Resources and Training (START)

http://www.gvsu.edu/autismcenter/

The START Project at Grand Valley State University offers training, resources, effective practice, and collaboration and networking for individuals who support students with autism.